Treatment Pathways & Barriers: Migraine Patient Survey
A nationwide survey uncovering barriers to diagnosis and preventive treatment access among migraine patients in Germany
Challenges
Diagnosis & Treatment Barriers
Addressing barriers to appropriate migraine diagnosis and Treatment.
Patient Challenges
Limited awareness of migraine, healthcare navigation challenges, and potential stigma.
Care & Physician Barriers
Differences in disease understanding and access to appropriate healthcare may contribute to gaps in care.
Objectives & Endpoints
Undiagnosed Migraine Cases
Identify participants meeting migraine criteria who were unaware of their condition or had no formal diagnosis.
Patient Profiles
Characterise patients according to diagnosis and healthcare utilisation, including those receiving preventive treatment.
Evidence Generation & Strategic Outcomes
Generate actionable evidence on patient-related predictors of barriers to care to inform targeted awareness and education initiatives.
Our Approach
Survey Design
Used validated measures to assess migraine symptoms, disease burden, stigma, healthcare utilisation, and the patient journey.
Academic Collaboration
Partnered with academia for shared research interests.
Innovative Chatbot Screening
Deployed a chatbot-based screening approach to identify and categorise participants into undiagnosed, diagnosed without preventive treatment, and diagnosed with treatment groups using a validated diagnostic scale.
Key Findings
High disease burden: Participants consistently reported moderate-to-severe headache intensity, frequent headache days, and marked impairment in quality of life.
Limited specialist care: Only around one-third of participants had consulted a neurologist or headache specialist, highlighting gaps in access to specialist care.
Underdiagnosis and low awareness: Approximately 40% of participants were unaware they had migraine, despite meeting diagnostic criteria
Business Impact & Outcomes
Care Barrier Insights: Identified key patient-related barriers, informing targeted patient awareness and HCP education with German societies and PAGs.
Awareness & Education: Highlighted opportunities to address migraine misconceptions and stigma through targeted awareness initiatives.
Supported Scientific Publication and evidence generation.
*Campaign Days Refers to the number of days between the first and last day of survey completions